About Us

Our son Nicholas had a life-saving stem cell transplant thanks to early detection of ALD, umbilical cord blood donation, and the amazing team at the University of Minnesota Children's Hospital.  Run for ALD, Cure the Boys 5K run and 1 mile walk is our homegrown event and the only one of its kind in Missouri.  Through this event and other opportunities, we raise awareness of ALD, share the hope of Nicholas's success story, and raise funds to support life-saving research at the University of Minnesota, one of the largest transplant centers in the world and a leader in ALD Research.  

    The University of Minnesota Leukodystrophy Center is working to identify the cause and predictors of active cerebral ALD in order to better diagnose and improve treatment for boys fighting adrenoleukodystrophy in the hopes of one day finding a cure.

 Knockout ALD's 8 year total will now be over $300,000 raised to help support the promising research of Dr. Troy Lund and his team.  Find out more about their work at https://www.pediatrics.umn.edu/divisions/blood-and-marrow-transplantation/leukodystrophy-center/give

To learn more about adrenoleukodystrophy, check out www.ALDconnect.org

There are a variety of ways to help the ALD cause in addition to signing up for Run for ALD.   We hope to help get newborn screening passed in all states to identify ALD boys early.  Visit aldalliance.org to find out more and sign the petition. As of Dec. 1, 2022, Missouri now screens all newborns for ALD!  Knockout ALD is proud to be a part of the MO NBS Task Force.

You can join the blood stem cell donor registry to help save lives by signing up for a swab kit at my.bethematch.org and spread the word about umbilical cord blood donation as well.  See the Be the Match link below for more info.

Follow us on instagram @knockoutald !