About Us
How We're Helping
How We're Helping
How We're Helping
Our son Nicholas had a life-saving stem cell transplant thanks to early detection of ALD, umbilical cord blood donation, and the amazing team at the University of Minnesota Children's Hospital. Run for ALD, Cure the Boys 5K run and 1 mile walk is our homegrown event and the only one of its kind in Missouri. Through this event and other
Our son Nicholas had a life-saving stem cell transplant thanks to early detection of ALD, umbilical cord blood donation, and the amazing team at the University of Minnesota Children's Hospital. Run for ALD, Cure the Boys 5K run and 1 mile walk is our homegrown event and the only one of its kind in Missouri. Through this event and other opportunities, we raise awareness of ALD, share the hope of Nicholas's success story, and raise funds to support life-saving research at the University of Minnesota, one of the largest transplant centers in the world and a leader in ALD Research.
The University of Minnesota Leukodystrophy Center is working to identify the cause and predictors of active cerebral ALD in order to better diagnose and improve treatment for boys fighting adrenoleukodystrophy in the hopes of one day finding a cure.
Knockout ALD's 7 year total is now over $250,000 raised to help support the promising research of Dr. Troy Lund and his team. Find out more about their work at https://www.pediatrics.umn.edu/divisions/blood-and-marrow-transplantation/leukodystrophy-center/give
To learn more about adrenoleukodystrophy, check out www.ALDconnect.org
How You Can Help
How We're Helping
How We're Helping
There are a variety of ways to help the ALD cause in addition to signing up for Run for ALD. We hope to help get newborn screening passed in all states to identify ALD boys early. Visit www.aidanslaw.org to find out more and sign the petition. As of Dec. 1, 2022, Missouri now screens all newborns for ALD! Knockout ALD is proud to be a
There are a variety of ways to help the ALD cause in addition to signing up for Run for ALD. We hope to help get newborn screening passed in all states to identify ALD boys early. Visit www.aidanslaw.org to find out more and sign the petition. As of Dec. 1, 2022, Missouri now screens all newborns for ALD! Knockout ALD is proud to be a part of the MO NBS Task Force.
You can join the blood stem cell donor registry to help save lives by signing up for a swab kit simply by texting KnockoutALDMO23 to 61474 and spread the word about umbilical cord blood donation as well. See the Be the Match link below for more info.
Follow us on instagram @knockoutald !
Thank You
How We're Helping
Thank You
Whether you help through monetary donations, volunteering your time at Run for ALD, signing Aidan's Law petition for newborn screening, or becoming a blood stem cell donor, thank you. We couldn't accomplish our goal of Curing the Boys without your help. We are so grateful for your prayers, support, and generosity! Together we can Knock Out ALD!
Our Partners/ALD Resources
University of Minnesota Leukodystrophy Center
ALD newborn screening
ALD Connect
calendar of events: https://aldconnect.org/calendar
Navigating Life with ALD
ALD Alliance
X out ALD
ALD Family Weekend
Remember the Girls
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8th Annual Run for ALD, Nov. 23rd, 2024!
Knockout ALD is excited to announce that registration is NOW OPEN for our 8th Annual Run for ALD, Cure the Boys: Nov. 23rd, 2024! 5K/1 mile run/walk near St. Louis, MO.