Knockout ALD
Knockout ALD is a non-profit dedicated to raising awareness of and funds for adrenoleukodystrophy research.
Knockout ALD is a non-profit dedicated to raising awareness of and funds for adrenoleukodystrophy research.
Knockout ALD is a tax-exempt 501(c)(3) nonprofit organization. Your generous gift is tax-deductible and will help us fund research projects at the University of Minnesota (a world leader in ALD treatment and research) that are working to improve treatments options that lead to better outcomes for ALD boys. Adrenoleukodystrophy (ALD) is a rare, progressive X-linked genetic disease that most severely affects boys. Without early diagnosis and treatment, boys with cerebral ALD eventually lose all neurological functions. Please click the "About Us" tab above to learn about our cause, our Run for ALD, our partners, and other ways to help.
You can make a donation through the PayPal button (fees are taken out from your donation), or mail a check directly to Knockout ALD, 1551 Timberlake Manor Parkway, Chesterfield, MO 63017.
**Donations also can be made on Venmo @KnockoutALD.
Together, we can make a difference and help Cure the Boys!
February is Rare Disease Month and ALD MAKE US BLUE, how about you? We are rockin' our BLUE...blue hair, blue nails, blue clothes, blue makeup, and more, and we want you to show your blue too for ALD.
Knockout ALD is honored to be a part of this new collaborative fundraising coalition. So join the ALD Makes Me Blue Challenge and challenge your family and friends as well!
Knockout ALD in the NEWS!
Check out our interview on KMOV St. Louis for Rare Disease Day!
https://www.kmov.com/video/2023/02/27/rare-neurological-disorder-added-missouri-newborn-screening/
Our 6th Annual Run for ALD took place on Nov. 19th and was our biggest yet with near 600 participants locally and around the world! We are so grateful to all those who supported from near and far and for all of our record-breaking 22 sponsors (listed below)! We couldn't do it without them. This year we were able to bring together ALD families (one newly-diagnosed from newborn screening in MO!), friends, and relatives, and celebrate and honor an ALD warrior who is recovering from his life-saving bone marrow transplant at the Univ. of Minnesota.
We are still accepting donations at our address above, through Paypal, or on our race website:
https://raceroster.com/events/2022/61701/run-for-ald-cure-the-boys
With funds raised through this year's event, Knockout ALD's total giving to the University of Minnesota's Leukodystrophy Center for ALD Research is now over $170,000!! The U of M recently added our Knockout ALD tile to their donor wall in the hospital lobby! We can't wait to see how much more we can raise to help initiate and push more ALD research forward!
Sign up to learn more about our cause and our next Run for ALD event!
Check out this great video of so many reasons why we are devoted to this cause dear to our hearts. Thanks to our friends in Minnesota and their nonprofit X out ALD, whom we partner with to raise funds for University of Minnesota ALD Research.
We can't wait to see you for our next Run for ALD on Nov. 19th in Creve Coeur, MO!
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Thank you to our record-setting near 590 participants! With 22 generous sponsors (our most ever!) and many donors, we raised over $40,000 for life-saving ALD research at the University of Minnesota!
The big day may have come and gone, but keep in touch as we’re always up to something new and exciting.
Our 6th Annual Run for ALD was our biggest yet with near 590 participants, both in-person and virtual! Despite the very cold winter weather, it was a great day for ALD!